Tag Archives: special needs

HAVING THE “FORCE” ON STAR WARS WEEKEND

Photo Credit: Ray Pilgrim

We are a Star Wars family, as well as a Disney Family.  In fact I am more of a Star Wars fan than a Disney fan.  We have all the movies and more.  So Star Wars Weekend is a combination of two of my favorite things.  I love going to Star Wars Weekend as there is so much excitement for a Star Wars Fan.  However, if you have a special needs member in the group there are three big problems; crowds, lines, and hot weather (there’s not much to do about that but stay hydrated).  With a little planning you can do it, and here are some tips we learned on our last trip to Star Wars Weekend.

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MELTDOWN, IT’S GOING TO HAPPEN

Photo Credit: Ray Pilgrim

One thing I have learned from our trips to Walt Disney World is that, at some point, a meltdown is going to happen.  We can prepare and take steps to prevent them, but just be prepared for them to happen.  Sometimes, the reasons are not even apparent to you why it’s happening.  Knowing that it’s going to happen will help you to minimize or with luck stop them before it reaches the point of no return.

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ROAD TRIP

Photo Credit: Ray Pilgrim

We’re heading out to Walt Disney World in May.  Now, when we head out to WDW we normally drive for several reasons.  First, the cost of driving 5 people in a car is a lot cheaper than flying 5 people.  Second, we like driving through the country and looking at the scenery as we drive by.  Last, we have a son that just does not like to fly.

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WHY DISNEY IS MAGICAL

Photo Credit: Ray Pilgrim

As many of you know April is Autism Awareness Month.  Autism has affected many in our nation and is a growing crisis.  1 child out of every 150 is affected.  Autism is a neural disorder that affects three areas: communication, social skills, and cognitive development.  Autism can affect each person differently causing a wide spectrum.  Sometimes a person may seem odd while others may be non communicative.  Josh, our son, was diagnosed officially at age four with autism, even though we knew a long time before there was a problem.  We have a different challenge in our life, but we know that when we go to Disney as a family, we can have a magical time.

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A WATER PARK CONFESSION

Photo Credit: Ray Pilgrim

My family has been to Walt Disney World many times.  My kids are well versed in the different parks there.  However, I have a water park confession.  Despite the many times we have been there and the many different things we have done while there, we have never been to a water park.  I know it’s shocking, but we have not gone for several reasons. One reason was that they where young and, for me, I’m cheap and felt the resort pool was just as good as a water park. The second was that I felt it took time away from the parks.  However, the main reason was I was worried how Josh with his autism would react towards the water park.

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I WISH I MAY, I WISH I MIGHT…

Photo credit: Meija Eller

Do you know why I love Disney World….Land….Paris? (Probably the others, too, but hey- I haven’t been there so I’m withholding judgment)  It’s because I can escape.  No, I don’t have a particularly distressing life.  I work hard, my husband and kids do too, and we enjoy throwing away reality and diving into a fairy tale.  Every once in awhile, though, I stop and think about those whose lives are, well….traumatic.  I mean, can you imagine?  More than that, can you imagine what a trip to Disney World would mean to them?

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THE BARE NECESSITIES

As a working mom, I often feel guilty about not staying home with my boys or being there when they get off the bus.  I miss being the parent to take them to after-school practices, or in Reagan’s case, therapies.  As hard as it is, I know that I am doing what I have to do to provide for my family.  I’m blessed with a good job and a great boss who lets me have the time I need to go to their school functions, doctor’s appointments, and yes – Disney World!

But guilt has often found me trying to make up for not always being there, and I find myself giving them material things or overdoing the simple things.  For example, I plan over-the-top birthday parties for them – you know the kind – where you take care of every minute detail and elaborate decorations, only to see them having more fun playing tag.  Or buying them an awesome Hot Wheels track with loops, bells, and whistles, only to see them pulling the wrapping paper tube out of the trash and using it for a tunnel.  (By the way, cardboard tubes also make cool swords that make a great sound without the pain when you whack your opponent.)

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THERE’S A SNOW WHITE ATTRACTION, TOO

Photo Credit: Ray Pilgrim

My kids love Disney animated movies.  They grew up on them and continue to watch them over and over.  For children with autism they need predictability and familiarity. It’s had for them to process something new, so they look for what they know. Having watched many of the Disney movies has helped my son and daughter get ready to go to the Disney Parks.

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SPECIAL NEEDS SACRED SEVEN

Photo Credit: Ray Pilgrim

Part of the DDL culture is the Sacred Seven.  These are seven principles on how to enjoy the park.  As a “Neurotic Disney Father” I heartily agree with these Sacred Seven, but for my special needs son we have to adjust them.  Here are our Special Needs Sacred Seven:

  1. Thou shalt play only Disney music when en route to Disney.  For us it is a 18 hour drive to Walt Disney World so we definitely listen to music not only to get us ready but also to help the children to get used to the music at the park.  We have all sorts of music from attractions to shows.  We even play games to see if they can guess where the music is from.
  2. Thou shalt ride the monorail when in Disney.  Aside from being an awesome mode of transportation, it is an easy way for Josh to get to Magic Kingdom or Epcot in his special needs stroller.  No need to fold up the stroller, and we even have a ramp to help us get into the monorail.
  3. Thou shalt arrive at the theme park before the gate opens.  This is important for several reasons.  First, it sets the mood for the day with the opening show. The Magic Kingdom show just sprinkles pixie dust for the day.  The practical side being it’s less crowded, and we can get a lot done before everyone else decides to show up for the day.
  4. Thou shalt repeat a ride if you want to before you move on.  This is different from the DDL Sacred Seven where you shalt not repeat a ride until all are done.  However, for us it is easier to do a favorite attraction several times before we move on.  With the picture schedule Josh can know what the order is, but it is okay to do “It’s a Small Word” several times before we go on to a new one.  If we don’t get to them all, it’s okay.
  5. Thou shalt not reject a ride until you get an idea of what it is.  A little different from the normal Sacred Seven where you can’t reject until you experience.  However, for special needs parents it helps to know what type of attractions your child can do or doesn’t like.  Not all attractions are good for Josh, and we have learned that the hard way.  However, with youtube you can get an idea of the attractions, and your child can even watch.  Nothing says fun like when your child decides it’s time to get off of the attraction midway through.  So, if you know the attraction is not for your special needs family member, go ahead and reject it.  There will be time for you to come back and try again.
  6. Thou shalt be photographed with Mickey Mouse at Disney, and Mickey needs to know how you are special.  There is nothing like meeting Mickey and his friends; however, to make it special for everyone, talk to Mickey’s guide to let him know.  Josh is very tactile and loves to touch. Once when we visited with Goofy, we told his guide about Josh and his touching.  She yelled out to Goofy, “Hey Goofy, we have a lover.”  Goofy knew what it meant, and they both had a great time.
  7. Thou shalt leave before it is too late.  When I say too late, I mean before everyone is too tired and overwhelmed.  Better to go before the point of no return for meltdowns.  When it’s just me, I love being there late after a lot of people have left.  With Josh we may have to leave early and take a break.  We can come back after he’s refreshed and ready to do more. We try to do as much as we can, but if we don’t get it done, it’s all right.  The park isn’t going anywhere.
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TRAVELING WITH SPECIAL NEEDS

Photo Credit: Chris Kolb

You may think visiting Walt Disney World with a person with special needs would be hard, but, as a result of great Disney service, it is easier than you might first think. When traveling to Walt Disney World with someone who has special needs, you should get a Guest Assistance Card.  This card lets cast members know that someone — and up to 5 other members of their party — should be permitted different access than is provided for an average guest.

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“CLUB” CAN BE A GOOD WORD

Photo Credit: Ray Pilgrim

Recently the Disney Cruise Line christened their brand new cruise ship, and it looks amazing.  We have not been on it yet, but we aspire to go on it.  We have had the opportunity to take a seven day cruise on the Disney Magic.  Before we had kids and became Neurotic Disney Fans, Rachel and I were cruisers but never a Disney Cruiser.  Well, then the kids came. We wanted to take a cruise, but we had to wait until they were old enough so we could throw them in the kids club and go off and have fun ourselves.

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I SPY DISNEY STYLE

Photo Credit: Beth L.

Getting kids to practice items that are tedious is a challenge, especially while trying to boost their self confidence. Imagine attempting to motivate your three-year-old son to practice his language skills for speech therapy. Yes, this is the “homework” that we have had to do recently.

JSL started speech back in September 2010 while at nursery school a few days a week. My little guy was dropping sounds at the start, end, and even middle of words. As a teacher, I knew something was wrong, but qualifying for speech can often be a battle with Early Intervention Services. This was not simply a second child being lazy, there was more to it. His hearing was fine, but for some reason, even though he was talking a lot, we could not understand a lot of what he was saying.

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EVEN MIRACLES TAKE A LITTLE TIME

For most parents, the day a child is born is one of the happiest days of their lives.  For me, it was one of the worst.  Following an unexpectedly complicated delivery, my oldest son, Reagan, came into this world with no heartbeat and very little blood left in his body.  After 9 ½ long minutes, I heard one of the NICU doctors say “We’ve got a heartbeat.”  That is a long time for the brain to go without oxygen, and by that time, the damage was done.

The next few days were very touch and go.  We were told that there was little chance of survival and if he did survive, Reagan would most likely live in a vegetative state.  We had to make some really tough decisions.  I had to come to terms with the realization that Reagan was God’s child and that if I had to let him go, I had to let him go.

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LIFE CHANGING

Photo Credit: Disney Photopass

At the age of  27 I was a stay at home mom with 3 beautiful girls and one on the way.  The last few months of my pregnancy were challenging and I was put on strict bedrest and then had a two week hospital stay before my daughter was born. I was assured that after giving birth the difficulties I was having would go away. Oh how I wish that were true. I gave birth to my daughter in October, and by the following January I was completely bedridden.  My husband had to work from home to care for my girls and me. Life as I knew it had changed, and I didn’t like it.

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THE LOVE OF DISNEY TRANSPORTATION

Photo creidt: Hosephy Levy

Children with Aspergers are often obsessed with certain topics or items.  Sometimes it is hard for these children to think of anything else except the topic or item of their obsession. My second oldest daughter, Madison, is obsessed with modes of transportation. We live in a somewhat rural area, so, when she made her first trip to Walt Disney World, you can imagine her excitement when she saw all of the different types of transportation offered by the resort. It seemed as though my daughter preferred to ride on the buses or monorail rather than actually go into the parks and see characters. Walt Disney World quickly became a happy place for her! When it was time to leave we wanted to bring some of the magic home for her, so we purchased a replica Disney monorail and Disney bus. These toys became staples in our daughter’s life and went with her everywhere. She used them every day until they broke.

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WHERE CAN I GO FOR PEACE?

Photo Credit: Ray Pilgrim

One universal truth about Disney is that it can get loud and busy.  There are some slower times of the years, but even then it can still get crowded.  Special needs children, normal children, and just about everyone can get overwhelmed.  There can be times where you just need a break from the magic.  The smart thing is go back to the resort, and take a break.  However, this is not always possible.

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DISNEY BRINGS LIFE TO MY DAUGHTER

Photo credit: Disney Photopass

As a mom you always want and expect that, when you have a child, he or she will be perfect, and nothing will go wrong. With my first born that was the case. She was just what a newborn, infant, and toddler should be. With my second one, however, we immediately saw signs after birth that something was off. Our second daughter, Madison, would not take a bottle of any kind or eat. We noticed that her eyes were always moving back and forth, and she was not focusing the way she should be. At 4 months old Madison was diagnosed with Albinism, which means that she lacks pigment in the hair, skin, and eyes. Due to lack of pigment in her eyes, she has low vision.

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WOULD YOU LIKE SOME HONEY WITH YOUR QUEUE?

photo credit: Ray Pilgrim

Walt Disney World has been busy lately with construction in the Magic Kingdom, and it has not all been on new Princess attractions.  They just recently improved the queue to the Many Adventures of Winnie the Pooh.  The queue is now an interactive queue for children of all ages.

First they increased the theming with more storybook pages on other items from the Hundred Acres Woods.  Along the queue there is a garden play area where pesky gophers can be found in the garden by either jumping on bouncing spots or playing tug of war with a gopher.  There are also musical vegetables that can be pounded on.   The queue is situated so that as a parent waits, the kids, both big and small, can play.

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BRAVING THE COLD IN THE PARKS

photo credit: Christin Clement

Yes, it does get cold at Walt Disney World. Despite contradictions and stories that it’s always warm, the weather can change fast and before you know, it you’re not prepared,  you’ll have a miserable time. This year, there were record and prolonged lows; but, even if it’s only for two days the cold weather can impact your trip.

Don’t forget:

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LETTING YOUR KIDS ‘GO IT ALONE’ AT WDW



Hello all, my name is Beth and I have been asked to share my expertise on special needs with everyone here. I’m often asked why the term “disabled” is not used. Special needs encompasses so much more than disabilities. I will cover topics on anger, stress, parenting and more as this affects many and is not limited to disabilities.

I am a mental health professional so I will focus on the mental health aspects of travel to a Disney park.

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